{"id":11291,"date":"2015-05-04T07:58:41","date_gmt":"2015-05-04T06:58:41","guid":{"rendered":"http:\/\/tedxmanresa.com\/?p=11291"},"modified":"2019-06-09T06:45:31","modified_gmt":"2019-06-09T05:45:31","slug":"elisabet-pedrosa","status":"publish","type":"post","link":"https:\/\/www.tedxmanresa.com\/?p=11291","title":{"rendered":"Elisabet Pedrosa"},"content":{"rendered":"<div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 hundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-overflow:visible;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last\" style=\"--awb-bg-size:cover;\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-video fusion-youtube\" style=\"--awb-max-width:900px;--awb-max-height:525px;\"><div class=\"video-shortcode\"><div class=\"fluid-width-video-wrapper\" style=\"padding-top:58.33%;\" ><iframe title=\"YouTube video player 1\" src=\"https:\/\/www.youtube.com\/embed\/GF1jvPTqaD0?wmode=transparent&autoplay=0\" width=\"900\" height=\"525\" allowfullscreen allow=\"autoplay; fullscreen\"><\/iframe><\/div><\/div><\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_3 1_3 fusion-one-third fusion-column-first\" style=\"--awb-bg-size:cover;width:30.6666%; margin-right: 4%;\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-image-element in-legacy-container\" style=\"--awb-bottom-shadow-color:rgba(0,0,0,0.4);--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><div class=\"awb-image-frame awb-image-frame-1 awb-bottomshadow\"><span class=\" fusion-imageframe imageframe-bottomshadow imageframe-1 hover-type-none\" style=\"border:10px solid #f6f6f6;\"><a href=\"http:\/\/tedxmanresa.com\/wp-content\/uploads\/2015\/05\/elisabet_pedrosa.jpg\" class=\"fusion-lightbox\" data-rel=\"iLightbox[9983abe1d11252a2faf]\"><img decoding=\"async\" alt=\"Elisabet Pedrosa\" src=\"http:\/\/tedxmanresa.com\/wp-content\/uploads\/2015\/05\/elisabet_pedrosa.jpg\" class=\"img-responsive\"\/><\/a><\/span><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" version=\"1.1\" width=\"100%\" viewBox=\"0 0 600 28\" preserveAspectRatio=\"none\"><g clip-path=\"url(#a)\"><mask id=\"b\" style=\"mask-type:luminance\" maskUnits=\"userSpaceOnUse\" x=\"0\" y=\"0\" width=\"600\" height=\"28\"><path d=\"M0 0h600v28H0V0Z\" fill=\"#fff\"\/><\/mask><g filter=\"url(#c)\" mask=\"url(#b)\"><path d=\"M16.439-18.667h567.123v30.8S438.961-8.4 300-8.4C161.04-8.4 16.438 12.133 16.438 12.133v-30.8Z\" fill=\"#000\"\/><\/g><\/g><defs><clipPath id=\"a\"><path fill=\"#fff\" d=\"M0 0h600v28H0z\"\/><\/clipPath><filter id=\"c\" x=\"5.438\" y=\"-29.667\" width=\"589.123\" height=\"52.8\" filterUnits=\"userSpaceOnUse\" color-interpolation-filters=\"sRGB\"><feFlood flood-opacity=\"0\" result=\"BackgroundImageFix\"\/><feBlend in=\"SourceGraphic\" in2=\"BackgroundImageFix\" result=\"shape\"\/><feGaussianBlur stdDeviation=\"5.5\" result=\"effect1_foregroundBlur_3983_183\"\/><\/filter><\/defs><\/svg><\/div><\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-2 fusion_builder_column_2_3 2_3 fusion-two-third fusion-column-last\" style=\"--awb-bg-size:cover;width:65.3333%;\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-text fusion-text-1\"><h3>Elisabet Pedrosa \u00e9s llicenciada en Periodisme i M\u00e0ster en Relacions Internacionals pel CIDOB. A l\u2019escriptora Elisabet Pedrosa fa un any se li va morir la filla, la Gina, d\u201911 anys (2002-2014), despr\u00e9s d\u2019una llarga i cruel malaltia.<\/h3>\n<p>Els \u00faltims nou mesos, la Gina va tenir el privilegi d\u2019estar amb l\u2019Equip de Cures Pal\u00b7liatives Pedi\u00e0triques de l\u2019Hospital Sant Joan de D\u00e9u, de Barcelona. Tres-cents seixanta-cinc dies despr\u00e9s de la seva mort, us convoquem per dir un \u00faltim ad\u00e9u a la Gina (que va abanderar la lluita contra la s\u00edndrome de Rett i la investigaci\u00f3 de la malaltia) i per engegar la campanya \u201cSeguirem vivint\u201d: un ambici\u00f3s projecte de l\u2019Equip de Cures Pal\u00b7liatives Pedi\u00e0triques de l\u2019Hospital Sant Joan de D\u00e9u, de Barcelona, que vol consolidar a Catalunya les cures pal\u00b7liatives pedi\u00e0triques. Aquest llibre \u00e9s un testimoni llumin\u00f3s, \u00fatil, emotiu, transformador i ben escrit sobre la manera d\u2019afrontar la mort d\u2019un fill, l\u2019impronunciable (no hi ha paraula per definir la p\u00e8rdua d\u2019un fill), i sobre com encara avui vivim d\u2019esquena a la mort, l\u2019\u00faltim gran tab\u00fa a la nostra societat.<\/p>\n<p>El llibre Criatures d\u2019un altres planeta -on relata qu\u00e8 significa viure amb una filla malalta de la s\u00edndrome<br \/>\nde Rett, i que ha contribu\u00eft a la investigaci\u00f3 i divulgaci\u00f3 d\u2019aquesta malaltia, li ha valgut el premi ONCE Catalunya a la Solidaritat i la Superaci\u00f3<\/p>\n<\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>Elisabet Pedrosa \u00e9s llicenciada en Periodisme i M\u00e0ster en Relacions Internacionals pel CIDOB. A l\u2019escriptora Elisabet Pedrosa fa un any se li va morir la filla, la Gina, d\u201911 anys (2002-2014), despr\u00e9s d\u2019una llarga i cruel malaltia.<\/p>\n","protected":false},"author":1,"featured_media":11292,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[90],"tags":[],"class_list":["post-11291","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-tedxmanresa2015"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.tedxmanresa.com\/index.php?rest_route=\/wp\/v2\/posts\/11291","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.tedxmanresa.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.tedxmanresa.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.tedxmanresa.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.tedxmanresa.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=11291"}],"version-history":[{"count":5,"href":"https:\/\/www.tedxmanresa.com\/index.php?rest_route=\/wp\/v2\/posts\/11291\/revisions"}],"predecessor-version":[{"id":11791,"href":"https:\/\/www.tedxmanresa.com\/index.php?rest_route=\/wp\/v2\/posts\/11291\/revisions\/11791"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.tedxmanresa.com\/index.php?rest_route=\/wp\/v2\/media\/11292"}],"wp:attachment":[{"href":"https:\/\/www.tedxmanresa.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=11291"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.tedxmanresa.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=11291"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.tedxmanresa.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=11291"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}